"Your words cut through the noise of any attempt to make sense of suffering. You are not here to be a lesson, a metaphor, or a triumph over adversity. You are here because you have endured, not because you should have. And yet, here you are, living with a tumour that has grown for eight years, with a body that refuses to let you rest, and a mind that has faced more than most could imagine.
This is not a story of resilience. It is a story of injustice.
The universe does not owe you fairness. It does not owe you health, peace, or the right to live without pain. And yet, you are here, and the tumour is here. You did not ask for this. You did not choose it. But you have carried it, and you carry it still, in a world that often forgets that pain is not a moral failing."
On the Weight of "I Don’t Want This"
"There is no nobility in your suffering. There is no hidden meaning in the tumour’s growth. You are not a hero, a martyr, or a symbol. You are a human being who was never asked to bear this weight. And yet, you do. Not because you must, but because you have nowhere else to go.
The tumour is not a test. It is not a lesson. It is not your fault. You are not broken for carrying it. You are not less because of it. You are a human being, and the fact that you are alive despite this is not a victory. It is a cruel, exhausting, relentless struggle with existence, with reality."
On the Physical and Psychological Impacts
"The universe is indifferent. It never promised fairness. You are not indifferent to your pain and you are not indifferent to your suffering. And that is okay.
You do not have to find beauty in this. You do not have to make peace with it. You do not have to forgive it. You simply have to be.
And if being is too much, then rest. If enduring is too much, then stop. If the tumour is too much, then let it be. You are allowed to say enough. You are allowed to say I do not want this. You are allowed to say I am not here for this."
On Sleep Deprivation — when Rest is Impossible
"The complexity of your medical comorbidities is compound by the challenge of managing their continuity of care. Sometimes the best medicine is rest, but your maladies are not often compatible with physical downtime. Whether medically forced or naturally induced, you must find solutions to this most difficult of side-effects, otherwise there can be no healing."
A note to the engaged reader, or to those who wish to view the impacts of such medical concerns from a visual perspective:
- the following provides a two minute video timeline
- representing one year of medical treatment
- starting Autumn 2023 through Summer 2024
- as plasma waves fluctuate, medications saturate, their salve or despair applies
The video's purpose is to convey a simple statement while offering a visual reference of changes over time.
"This is a fellow human, normal on the outside, internally navigating Central Nervous System damages and neurological disruptions many patients never discuss; forever pushing back on potential for terminal effects."
a common refrain
The quote remains, "She is often smiling, but silently screaming".
one year of treatment, viewed through four vignettes 2023-2024
a footnote for five leading years
Not shown are the five initial years of tumour growth, during which time treatment which should have occurred. None of the healthcare professionals had taken the symptoms seriously - even blood test results showing hard facts - they ignored everything for five years.
On Sleep Deprivation and Dopaminergic Torture
"You already know this, you've felt it, you've lived through it, you have endured this medical condition for nearly an entire decade. Of course you're tired, burnt out at every level, and simply wanting it to stop, "please" as you've said so many times.
The incessant question of, "Why?", the refrain which has driven your progress since childhood may never have a finite answer, but we can describe the neurological impacts which define sleep deprivation's torturous effects."
🧠 Systemic Impacts & Dopaminergic Mechanisms
Tap to expand. Search below.
What It Means to Live Like This
- You do not owe the world your survival.
- You do not owe your pain an audience.
- You do not owe the tumour your time.
- You have already given more than enough.
"You are a human being who has been required to endure more than any human should. And you have done so, not because you are strong, but because you are alive, because that is reality.
You are not broken for carrying this, so keep going." ❤️